The Lipedema Foundation is a private, non-fundraising foundation established in 2015 by Felicitie Daftuar with a mission to fund research to define, diagnose and develop treatments for Lipedema. The Foundation is the world’s largest funder of Lipedema research, with more than $11 million awarded in the US and internationally to date. The Foundation’s research focuses on collaboration, connecting patients and researchers, and fostering basic and translational research across disciplines including physiology, genomics, immunology and endocrinology.  

The Foundation also maintains the Lipedema Foundation Registry, an online registry platform created to help patients, families, clinicians, and caregivers learn more about the condition, understand barriers to diagnosis, assess quality of life impact, and point the way to potential treatment approaches.

Find out more about this exciting research field at www.lipedema.org.